UC Research Data Privacy Summit

Banner for the UC Research Data Privacy Summit

Data Privacy Throughout the Research Lifecycle

UCOP’s ECAS, RPAC, UC Legal, and UC Health are pleased to invite you to a virtual interactive systemwide event to discuss laws, regulations, policies and processes impacting research data privacy throughout the research lifecycle. This event is designed to bring together IRB directors, research compliance, health and campus privacy, contracts and grants officers, and information security stakeholders together to address common issues and identify processes, gaps, and potential solutions. The summit will take place on Thursday, January 27, 2022, from 9am-4pm.

Summit Format:

  • A legal and compliance primer (in two parts) on data privacy throughout the research study lifecycle
  • Moderated breakout sessions to discuss common challenge areas; report-backs on learnings and opportunities for systemwide and local solutions
  • Topical self-paced worksheets to assess your program’s strengths and opportunities throughout the day

Topics Include:

  • Genetic data in research: discussing views on its identifiability
  • Non-human subjects research using PHI/PII
  • Ensuring compliant movement of PHI around a HIPAA hybrid entity for research purposes
  • Confidentiality breaches and obligations of UC and others involved
  • Secondary use of research data
  • Beyond law and UC policy-what is good data privacy stewardship?

Additional details along with the agenda will be circulated in the coming months.

We look forward to seeing you on the 27th of January!